UMD is a collaboration of established and internationally recognized experts working in the clinic, laboratory and basic science in the field of inherited metabolic diseases.
UMD Board
Clara van Karnebeek program director
Hans Waterham program director
Terry Derks coordinator theme 1
Dirk Lefeber coordinator theme 2
Nanda Verhoeven-Duif coordinator theme 3
Hidde Huidekoper coordinator theme 4
Pim Pijnappel coordinator theme 5
Hanka Dekker VKS representative
Estela Rubio-Gozalbo representative for pediatric patients
Martijn Brouwers representative for adult patients
Eline Kuipers UMD program manager
Medical doctors, researchers and laboratory specialists of the six metabolic academic centers of the Netherlands and the umbrella patient organization VKS.
The Metakids Foundation facilitated the establishment of the UMD with revenues from the ‘VriendenLoterij Prijzenmarathon’ in 2018 and will do so for at least the next 5 years. In addition, the Metakids Foundation and the UMD will collectively and separately raise additional funding to maintain and further develop UMD into a sustainable collaboration.
